HIBA researchers Isto Huvila, Noora Hirvonen, Heidi Enwald and Kristina Eriksson-Backa met each other in Uppsala in October 10th to 11th 2017 to discuss ongoing studies and plan future research. Moreover, the research group met researchers from the DOME consortium to share ideas and talk about potential common research interests.
HIBA researchers were present at Information Studies Days (Informaatiotutkimuksen päivät) held in Tampere at 3rd and 4th of December 2016.
Information Studies days is a national, biennial conference arranged by the National Association of Information Studies ITY ry (Informaatiotutkimuksen yhdistys) and the three departments that provide education in the field of information studies in Finland, namely, Information Studies at the University of Oulu, Information Studies and Interactive Media at the University of Tampere, and Information Studies at Åbo Akademi University. In 2016 the days were organized at the University of Tampere with around 150 participants.
As the Chairman of ITY, HIBA researcher Heidi Enwald opened the days. Her welcoming words were followed by Kai Halttunen’s talk about the history of these days and Professor Erkki Karvonen’s keynote speech on how information and communication technologies shape society and culture.
I myself hosted a session labeled Health infomation behaviour, health information literacy and e-health with four presentations:
Heidi Enwald presented preliminary results of our systematic review on previous research on the views of older adults of the contents of eHealth services. It seems that relatively few studies have focused on the content of these services the main interest being in the acceptance of used technologies.
Jonas Tana talked about infodemiology which refers to the study of the determinants and distribution of health information in an electronic medium with a goal to improve public health. In his doctoral study Jonas is going to investigate how infodemiological data can be used to increase understanding of online health information seeking behaviour.
I presented the framework of the project CogAHealth that has just started at the University of Oulu. In this project we are focusing on young people’s conceptions of cognitive authority in the context of health, that is, who and what do young people believe in health issues and how these beliefs are constructed. This joint project with Information Studies and Educational Sciences at the University of Oulu is funded by the Academy of Finland. In connection to this, doctoral student Anna-Maija Huhta, who is part of the CohAHealth research group, talked about her research concerning young people’s new health literacies. In particular, Anna-Maija is interested in studying young people’s literacy practices in social media.
HIBA researcher Kristina Eriksson-Backa hosted a session Information behaviour and information practices among minority and special groups with four presentations:
Ari Haasio talked about sharing information in a “small world” by prensenting a study of a discussion group called Hikikomero. Based on his analysis of the discussions, Ari presented a model of interaction in discussion group posts. Nahla Hewidy spoke about the service needs of asylum seekers. She and her colleagues had studied the needs of this group of people in order to formulate guidelines to develop and improve library services.
A doctoral student at the University of Oulu, Aira Pohjanen, presented her study concerning the information seeking of gender minorities. The study focused on the importance of peers in information seeking. At the end of this session, J Tuomas Harviainen presented an interesting and perhaps a bit unusual study on the information practices of Finnish sadomasochists.
In a parallel Knowledge management session HIBA researcher Helena Känsäkoski presented her study on information and knowledge processes in health care. In her presentation, Helena introduced a model of information and knowledge processes in health care and presented results of an empirical study on the role of the patients and families in these processes.
Overall, this year there were 32 presentations at the Information Studies Days the topics ranging from information behaviour to digital humanities and data management. Extended abstracts for all of the presentations were published in Informaatiotutkimus 35(3).
The HIBA project approach and rationale for studying health information behaviour and health information literacy as a premise of developing successful e-health services is discussed in a new article just published in the Finnish Journal for eHealth and eWelfare vol 8, issue 4.
The aim of this article is to bring forward the benefits of a better integration of a comprehensive understanding of individuals information behaviour in the design and development of e-health services. This study is a descriptive review based on a non-exhaustive selection of literature that describes the state-of-the-art, problems and opportunities identified in e-health, health information behaviour and health information literacy research. By focusing on how to tailor the information provided and the technological devices to fit the information behaviour, the approach has also potential to uncover new insights into how to adequately implement and integrate ICTs into everyday life practices of other hard-to-reach groups in society. We presuppose that it will be possible to give practical recommendations based on a combined understanding of individual differences in health information behaviour and users expectations and experiences, acquired through empirical studies focusing on older adults. Moreover, the usefulness of health information literacy as an indicator of the patterns and competences related to health information behaviour is highlighted.
Full text of the article at FinJeHeW site.
This year the spring seminar of the National Society of Information Studies (Informaatiotutkimuksen yhdistys, ITY) was conducted in collaboration with the HIBA-project and with Information Studies, University of Oulu on 11th May at Oulu University. About 30 people participated the event and remote connection was also provided. The title of the seminar was Health information and eServices introducing multidisciplinary aspects on the topic.
Senior lecturer Kristina Eriksson-Backa (Åbo Akademi University, Information Studies) presented the HIBA project, its research questions, methods and current stage of the research. The practical contribution of the HIBA project aims at understanding human information behavior to provide evidence-based recommendations how consumer health information technologies and their information contents could be designed and tailored to meet consumers’, in particular older adults’ (born 1946-1960), needs and preferences.
University lecturer Heidi Enwald (University of Oulu, Information Studies ) presented some findings of the recently ended multidisciplinary GASEL (Gamified services for elderly) project. The project was funded by National Technology and Innovation Agency TEKES from 1.1.201 to 30.4.2016. Increasing ageing population’s use of information technology related to health was studied with a population-based questionnaire survey. The questionnaire was posted to 1500 home dwelling people aged 65 or more living in Oulu area. The return rate was 61 percent. The findings indicated that 74,5 % of the respondents had Internet connection at home. The Internet was most frequently (65 %) used for multiple e-Services (e.g. bank, tax services, tickets etc.) and the second popular activity (55,5,%) was to find information for example about timetables, health related aspects etc. The next popular activities were reading news (49,8%) and using different communication channels (41,7%, e.g. e-mail, Skype etc.) Regarding to health information there were some gender differences, for example men were more likely to consider that health related stories and articles are too long.
University lecturer Noora Hirvonen from Oulu University Information Studies spoke about studies of everyday health information literacy (EHIL) in different groups. Everyday health information literacy refers to competencies to find, to evaluate and to understand health-related information in everyday life situations. An EHIL screening tool (designed by Niemelä et al. 2012) is based on the Medical Library Association’s definition of health information literacy (2003). The EHIL tool is based on self-assessment and aims at identifying people with limited everyday health literacy. The EHIL tool has been piloted with a survey (n=217) in an upper secondary school in Finland in 2012 and further applied in a population of Finnish young men in 2012 and 2013 (n= 1870), with Finnish individuals with high risk for metabolic syndrome in 2013 and 2014 (n= 571) and with Namibian students (n= 271) with an English version of the tool. The comparison of the results indicates that different factors of EHIL seem to be important in different populations. Terminology and reliability of health information sources were important for people with high risk of metabolic syndrome and for Namibian students whereas lack of motivation was important with young Finnish men.
Pasi Karppinen (University of Oulu, Department of Information Processing Science) presented the eHealth service Onnikka which was designed for people with overweight or obesity (BMI 27-35) in a randomized lifestyle intervention study (PrevMetSyn). The study subjects were working-age males and females from the Northern Ostrobothnia Hospital District. The study groups A and B had eight (group A) or two (group B) group counselling visits and the study group C was a control group which used the Onnikka service with no counselling visits. The Onnikka service was designed according to the Persuasive Systems Design (PSD) model (see Oinas-Kukkonen & Harjumaa 2009) containing the elements of primary task support, dialogue support, credibility support and social support. 43 users of Onnikka were interviewed after one year about their user experiences. The results showed that for example self-monitoring, reminders and tunneling were perceived as a beneficial persuasive features among the users. The credibility of the service was perceived high (the institutions behind the service were well known and highly respected) but the need and use for social support was somewhat contradictory. The discussion forum was perceived useful, but it was not actively used by the participants.
After the lunch break Hai Nguyen (HIBA researcher at Åbo Akademi University, Information Studies) presented findings from a study of Health Information Technology implementation and success factors in Nordic countries. Health Information Technology (HIT) systems store and retrieve information to support patient care activities, support administrative and financial activities (e.g. patient accounting, payroll, materials management etc.) and provide information and analytical tools to executive decision support systems for purposes of managerial decision-making. Success factors of implementing HIT systems were identified with a literature review and tested with a survey of 91 health care IT managers in the Nordic countries (Denmark 14, Finland 32, Norway 25 and Sweden 20). Some similarities in the Nordic comparison indicate that a more general instrument to define success factors for HIT implementation could be designed.
Associate professor Samantha Adams from Tilburg University Law School (Netherlands) spoke about online rating and recommendations sites in health care. This phenomenon is not yet familiar in Finland, but in USA and some European countries sharing opinions and experiences about hospitals and health clinics is in use. The basic idea is to improve quality of care and patient-centeredness by increasing transparency. However, the usefulness of the sites, ethical issues and true impact on the quality of care are not simple issues and need to be discussed further.
The slides of the presentations will soon be available at the webpages of the National Society of Information Studies (Informaatiotutkimuksen yhdistys, ITY)
Niemelä, R., Ek, S., Eriksson-Backa, K. & Huotari, M.-L. (2012). A screening tool for assessing everyday health information literacy. Libri: International Journal of Libraries and Information Services 62(2): 125–134.
Oinas-Kukkonen, H & Harjumaa, M (2009) Persuasive Systems Design: Key Issues, Process Model, and System Features. Communications of the Association for Information Systems. 24(1): 485-500.
Informaatiotutkimuksen yhdistyksen (ITY ry) kevätseminaari
KE 11.5.2016, klo 9.15-13.30 Oulun yliopisto, TellUs Innovation Arena, Stage-tila
Seminaari järjestetään yhteistyössä Åbo Akademin HIBA-hankkeen ja Oulun yliopiston Informaatiotutkimuksen oppiaineen kanssa. Tilaisuuteen on vapaa pääsy, myös muille kuin ITY:n jäsenille, ei etukäteisilmoittautumista. Tilaisuutta voi seurata myös etänä (ilmoita tästä kiinnostuksesi Heidi Enwaldille viimeistään ma 9.5., firstname.lastname@example.org ). Seminaari on englanninkielinen. Seminaarin jälkeen samassa tilassa järjestetään yhdistyksen kevätkokous (suomeksi).
First part 9.15-11.00
Welcoming words, Heidi Enwald
Introduction to HIBA-project, Kristina Eriksson-Backa (20 min)
GASEL project: eServices for healthy ageing, Heidi Enwald (20 min)
Everyday health information literacy in different populations, Noora Hirvonen (20 min)
From all the presentations 10 min discussion
Pasi Karppinen: Health Behavior Change Support Systems – Case of Preventing Metabolic Syndrome (20 min + 10 min for discussion)
Hai Nguyen: Exploring Health Information Technology implementation success factors – a comparative investigation in Nordic countries (20 min + 10 min for discussion)
Samantha Adams: Questioning the rise of online rating and recommendation sites in healthcare (30 minutes + 10 minutes for discussion)
Closing of the seminar, Heidi Enwald
Pieni tauko ja n. 12.40 alkaen ITY:n kevätkokous samassa tilassa (kesto noin 1 h). Kaikki yhdistyksen toiminnasta kiinnostuneet ovat tervetulleita kokoukseen!