ZPID Symposium – Health Literacy Across the Life Span

Leibniz Institute for Psychology Information, ZPID organized a one day symposium “Health Literacy Across the Life Span” at 10th of March 2017. The day included interesting speakers from Germany and Finland from multiple backgrounds. The symposium was intentionally kept as small-scale and the aim was to sustain discussion and possible future collaboration.

Renate Soellner from University of Hildesmein, Germany told about research project ”Health competence – model building and validation”. They developed, tested and validated a qualitative structural model (so called concept-map) on health literacy. The main questions were: Which skills and abilities build the health literacy construct? How do health competent persons behave? An article has been published on the model (Soellner, Lehartz & Rudinger 2017). Central concepts of the model are self-control and self-regulation.

Sonia Lippke from Jacobs University Bremen, Germany started her talk by telling about the HAPA model (Schwartzer 1992) In this health behaviour change model self-efficacy is one central factor and the goals turn into  plans that turn into behavior. Non-intender becomes intender and finally actor. Health literacy can be seen as part of this model. According to Lippke the main deficiency on this model is that is focuses only on one behaviour at time. Therefore she has been involved in developing a new ”lifestyle change model” called Compensatory Carry-Over Action Model (CCAM).

Sonia Lippke

Maija-Leena Huotari from University of Oulu, Oulu, Finland told about the research project conducted at Information Studies in University of Oulu and Åbo Akademi University. She talked about the everyday health information literacy (EHIL) screening tool (Niemelä et al. 2012) and about the new research project, CogAHealth, that is funded by Academy of Finland and has started in Autumn 2016. In this project the concept of cognitive authority is central and Huotari spoke also about it´s connection to EHIL.

Anne-Kathrin Mayer and Maija-Leena Huotari

Cristiane Firnges from Robert Koch Institute, Berlin, Germany pointed out the need to develop health literacy measures for younger populations, i.e., age-specific assessment tools. She belongs to Health Literacy in Childhood and Adolescence (HLCA) Consortium: https://www.hlca-consortium.de/

Firnges and her colleagues have been developing of MOHLAA-measuring instrument. HLS-EU-Q47 (e.g., Sorensen et al. 2013) measure was used as a blueprint. Not all tems and items contents of the HLS-EU-Q47 were well understood by adolescents or they might have answered them based on hypothetical estimations/lack of experience. There was found to be a need to adapt particular items for adolescents´cognitive abilities and to their lifeworld and experiences. Limited experiences with navigating the health care system and managing diseases was obvious among the teenagers. Critical thinking is still challenge and they might be overly confident about their skills. Adolescents, especially younger ones, have strong trust to their parents.

Anne-Kathrin Mayer and Cristiane Firnges

Orkan Okan from University of Bielefeld, Germany presented the childhood perspective. Measuring health literacy of primary school-aged children (MoMChild study). He started by telling about a systematic literature review on health literacy instruments and what of them have been used for children. Okan and his colleagues has been adapting HLS-EU-Q for this age group and they are now collecting large-scale data among German children.

Orkan Okan

Anne-Kathrin Mayer Research coordinator of Leibniz Institute for Psychology Information, ZPID told about the health information literacy knowledge test (HILK) they have developed and tested. The test includes 24 items and at the latest stage it has been tested among 144 students. They have also worked on validating the test.

Veronika Kuhberg is a doctoral student at ZPID. Her presentation focused on determinants of health information literacy (HILK) in vocational school students and especially to the role of locus of control and personal beliefs. Especially external health locus of control seems to be an independent factor affecting health information literacy among this population group.

Papers will be written based on the presentations and they will be published later as a book. The day was very fruitful and I thank for Anne-Kathrin Mayer for inviting me to participate!

Heidi

HIBA at Information Studies Days 2016

HIBA researchers were present at Information Studies Days (Informaatiotutkimuksen päivät) held in Tampere at 3rd and 4th of December 2016.

Information Studies days is a national, biennial conference arranged by the National Association of Information Studies ITY ry (Informaatiotutkimuksen yhdistys) and the three departments that provide education in the field of information studies in Finland, namely, Information Studies at the University of Oulu, Information Studies and Interactive Media at the University of Tampere, and Information Studies at Åbo Akademi University. In 2016 the days were organized at the University of Tampere with around 150 participants.

As the Chairman of ITY, HIBA researcher Heidi Enwald opened the days. Her welcoming words were followed by Kai Halttunen’s talk about the history of these days and Professor Erkki Karvonen’s keynote speech on how information and communication technologies shape society and culture.

I myself hosted a session labeled Health infomation behaviour, health information literacy and e-health with four presentations:

Heidi Enwald presented preliminary results of our systematic review on previous research on the views of older adults of the contents of eHealth services. It seems that relatively few studies have focused on the content of these services the main interest being in the acceptance of used technologies.

Jonas Tana talked about infodemiology which refers to the study of the determinants and distribution of health information in an electronic medium with a goal to improve public health. In his doctoral study Jonas is going to investigate how infodemiological data can be used to increase understanding of online health information seeking behaviour.

Anna-Maija Huhta

Anna-Maija Huhta explaining her research at Information Studies Days 2016. Picture: Heidi Enwald

I presented the framework of the project CogAHealth that has just started at the University of Oulu. In this project we are focusing on young people’s conceptions of cognitive authority in the context of health, that is, who and what do young people believe in health issues and how these beliefs are constructed. This joint project with Information Studies and Educational Sciences at the University of Oulu is funded by the Academy of Finland. In connection to this, doctoral student Anna-Maija Huhta, who is part of the CohAHealth research group, talked about her research concerning young people’s new health literacies. In particular, Anna-Maija is interested in studying young people’s literacy practices in social media.

HIBA researcher Kristina Eriksson-Backa hosted a session Information behaviour and information practices among minority and special groups with four presentations:

Ari Haasio talked about sharing information in a “small world” by prensenting a study of a discussion group called Hikikomero. Based on his analysis of the discussions, Ari presented a model of interaction in discussion group posts. Nahla Hewidy spoke about the service needs of asylum seekers. She and her colleagues had studied the needs of this group of people in order to formulate guidelines to develop and improve library services.

A doctoral student at the University of Oulu, Aira Pohjanen, presented her study concerning the information seeking of gender minorities. The study focused on the importance of peers in information seeking. At the end of this session, J Tuomas Harviainen presented an interesting and perhaps a bit unusual study on the information practices of Finnish sadomasochists.

In a parallel Knowledge management session HIBA researcher Helena Känsäkoski presented her study on information and knowledge processes in health care. In her presentation, Helena introduced a model of information and knowledge processes in health care and presented results of an empirical study on the role of the patients and families in these processes.

Audience

Audience listening to a presentation at Information Studies Days 2016. Picture: Heidi Enwald

Overall, this year there were 32 presentations at the Information Studies Days the topics ranging from information behaviour to digital humanities and data management. Extended abstracts for all of the presentations were published in Informaatiotutkimus 35(3).

New article: Taking Health Information Behaviour into Account in the design of e-health services

The HIBA project approach and rationale for studying health information behaviour and health information literacy as a premise of developing successful e-health services is discussed in a new article just published in the Finnish Journal for eHealth and eWelfare vol 8, issue 4.

Abstract

The aim of this article is to bring forward the benefits of a better integration of a comprehensive understanding of individuals information behaviour in the design and development of e-health services. This study is a descriptive review based on a non-exhaustive selection of literature that describes the state-of-the-art, problems and opportunities identified in e-health, health information behaviour and health information literacy research. By focusing on how to tailor the information provided and the technological devices to fit the information behaviour, the approach has also potential to uncover new insights into how to adequately implement and integrate ICTs into everyday life practices of other hard-to-reach groups in society. We presuppose that it will be possible to give practical recommendations based on a combined understanding of individual differences in health information behaviour and users expectations and experiences, acquired through empirical studies focusing on older adults. Moreover, the usefulness of health information literacy as an indicator of the patterns and competences related to health information behaviour is highlighted.

Full text of the article at FinJeHeW site.

Learning about information literacy at ECIL and participating ASIST

The European Conference on Information Literacy (ECIL) took place at Prague, Czech Republic at 10.-13.10.2016. Straight after ECIL the Annual Meeting of the Association for Information Science and Technology (ASIST) gathered researchers all around the world to Copenhagen, Denmark. Timing of the conferences provided me a great opportunity to join both of the conferences.

ECIL is initiated and organized by the Department of Information Management of Hacettepe University and Department of Information and Communication Sciences of Zagreb University. The main theme this year was Information Literacy in the Inclusive Society. IMG_9144_ECIL_blogiin

The keynote speeches were given by Tara Brabazon and Jan Van Dijk, and futhermore, invited speakers were Ole Pilerot, Vít Šisler and Annemaree Lloyd. Especially the keynote speeches raised discussion as Tara was intentionally very provocative in her speech and Jan´s perspective was from outside of the information and library science field.

As a member of the HIBA project I presented some of our results relating to older adults health information literacy skills. The study presented was part of the GASEL study.

WP_20161010_17_44_11_Pro_blogiin Heidi

Heidi´s PechaKucha presentation on “everyday health information literacy of older people in Finland”.

ECIL focused strongly on libraries and information literacy teaching, but there was always also a more theoretical and/or general paper or panel sessions to attend for.

IMG_9410_ECIL blogiin

Example of the interesting panel discussions in ECIL.

The abstract book of ECIL can be found here: http://ecil2016.ilconf.org/wp-content/uploads/2016/10/ECIL2016_BoA.pdf and selected full text papers will be later published in a ECIL’s Proceedings Books are  published by Springer (agreement with the publisher is on yearly basis) under Communications in Computer and Information Science series (CCIS).

ASIST´s theme was Creating Knowledge, Enhancing Lives through Information & Technology. Plenary speeches were given by Greg Welch from University of Central Florida and by Markus Bundschus from Roche Diagnostics.

The topics of ASIST presentations and panels covered all from health information behaviour to digital data curation and the science of games. In addition to sessions relating to information behaviour I found myself listening sessions about e.g., multiculturalism of LIS education, digital sociology and information science research, open peer review and lifelogging. Examples of the panels in ASIST: IMG_9862_ASIST blogiinIMG_9811_ASIST blogiin

ASIST included not only paper presentations and panels but also several poster presentations. Again I was there presenting the results relating HIBA and GASEL projects. This time the topic was “opinions and use of mobile information technology around older people”.

IMG_9828_ASIST blogiin Heidi

Heidi with the poster.

The ASIST proceedings and information of the previous conferences can be found here (free view for ASIST members): https://www.asist.org/publications/annual-meeting-proceedings/

Older people were present also in the street view of Copenhagen with a campaign “Do we ever stop dreaming?”

IMG_9796_ASIST_blogiin

Next ECIL will be organized in St-Malo, France and next ASIST at Washington DC. Shall we meet there?

(Post blog written by Heidi Enwald)

Focus on health information behaviour

IMG_9067_Isto_HIBA

Heidi, Noora and Isto from HIBA participated in this year’s ISIC – The Information Behaviour Conference in Zadar, Croatia. Also Anna-Maija who worked in the project in autumn 2015 was with us in Zadar.

Heidi Enwald, foto: Mate Juric

Heidi reported findings from an earlier GASEL project in a paper titled Health information behaviour, attitudes towards health information and motivating factors for physical activity among older people: differences by sex and age together with coauthors, Noora  and her coauthors presented a poster Validating the factorial structure of the everyday health information literacy screening tool in three different populations, and we all from HIBA presented the project in a poster, imaginatively titled Taking health information behaviour into account in the development of e-health services.

IMG_8904_Ian

Prof. Ian Ruthwen

There were also several other interesting papers relating directly to the themes of HIBA. Prof. Ian Ruthwen discussed in his opening keynote information behaviour during significant life events. The talk gave much food for thought as health related events are a major category of these types of major episodes in life but also because it is not always the case. Much of the everyday health and health information practices are not experienced as significant events that apparently also affects how we react to them and what kinds of information practices stem from these mundane events and how they differ from more significant episodes of life.

Of other interesting papers, you could mention the two other papers in Heidi’s session. Ina Fourie and Valerie Nesset reported of an exploratory review of research on cancer pain and information-related needs, and Theresa Anderson and Ina Fourie discussed about information interactions related to empathetic care for the dying.

ITY spring seminar 11.5.2016 – Health information and eServices

This year the spring seminar of the National Society of Information Studies (Informaatiotutkimuksen yhdistys, ITY) was conducted in collaboration with the HIBA-project and with Information Studies, University of Oulu on 11th May at Oulu University. About 30 people participated the event and remote connection was also provided. The title of the seminar was Health information and eServices introducing multidisciplinary aspects on the topic.

Chair of ITY Heidi Enwald presenting wellcomin words

Chair of ITY Heidi Enwald presenting wellcoming words to the seminar

Senior lecturer Kristina Eriksson-Backa (Åbo Akademi University, Information Studies) presented the HIBA project, its research questions, methods and current stage of the research. The practical contribution of the HIBA project aims at understanding human information behavior to provide evidence-based recommendations how consumer health information technologies and their information contents could be designed and tailored to meet consumers’, in particular older adults’ (born 1946-1960), needs and preferences.

 University lecturer Heidi Enwald (University of Oulu, Information Studies ) presented some findings of the recently ended multidisciplinary GASEL (Gamified services for elderly) project. The project was funded by National Technology and Innovation Agency TEKES from 1.1.201 to 30.4.2016. Increasing ageing population’s use of information technology related to health was studied with a population-based questionnaire survey. The questionnaire was posted to 1500 home dwelling people aged 65 or more living in Oulu area. The return rate was 61 percent. The findings indicated that 74,5 % of the respondents had Internet connection at home. The Internet was most frequently (65 %) used for multiple e-Services (e.g. bank, tax services, tickets etc.) and the second popular activity (55,5,%) was to find information for example about timetables, health related aspects etc.  The next popular activities were reading news (49,8%) and using different communication channels  (41,7%, e.g. e-mail, Skype etc.) Regarding to health information there were some gender differences, for example men were more likely to consider that health related stories and articles are too long.

Noora Hirvonen

Noora Hirvonen

University lecturer Noora Hirvonen from Oulu University Information Studies spoke about studies of everyday health information literacy (EHIL) in different groups. Everyday health information literacy refers to competencies to find, to evaluate and to understand health-related information in everyday life situations. An EHIL screening tool (designed by Niemelä et al. 2012) is based on the Medical Library Association’s definition of health information literacy (2003). The EHIL tool is based on self-assessment and aims at identifying people with limited everyday health literacy. The EHIL tool has been piloted with a survey (n=217) in an upper secondary school in Finland in 2012 and further applied in a population of Finnish young men in 2012 and 2013 (n= 1870), with Finnish individuals with high risk for metabolic syndrome in 2013 and 2014 (n= 571) and with Namibian students (n= 271) with an English version of the tool. The comparison of the results indicates that different factors of EHIL seem to be important in different populations. Terminology and reliability of health information sources were important for people with high risk of metabolic syndrome and for Namibian students whereas lack of motivation was important with young Finnish men.

Pasi Karppinen (University of Oulu, Department of Information Processing Science) presented the eHealth service Onnikka which was designed for people with overweight or obesity (BMI 27-35) in a randomized lifestyle intervention study (PrevMetSyn). The study subjects were working-age males and females from the Northern Ostrobothnia Hospital District. The study groups A and B had eight (group A) or two (group B) group counselling visits  and the study group C was a control group which used the Onnikka service with no counselling visits. The Onnikka service was designed according to the Persuasive Systems Design (PSD) model (see Oinas-Kukkonen & Harjumaa 2009) containing the elements of primary task support, dialogue support, credibility support and social support. 43 users of Onnikka were interviewed after one year about their user experiences. The results showed that for example self-monitoring, reminders and tunneling were perceived as a beneficial persuasive features among the users. The credibility of the service was perceived high (the institutions behind the service were well known and highly respected) but the need and use for social support was somewhat contradictory. The discussion forum was perceived useful, but it was not actively used by the participants.

Pasi Karppinen

Pasi Karppinen

Hai Nguyen presentation

Hai Nguyen presentation

After the lunch break Hai Nguyen (HIBA researcher at Åbo Akademi University, Information Studies) presented findings from a study of Health Information Technology implementation and success factors in Nordic countries. Health Information Technology (HIT) systems store and retrieve information to support patient care activities, support administrative and financial activities (e.g. patient accounting, payroll, materials management etc.) and provide information and analytical tools to executive decision support systems for purposes of managerial decision-making. Success factors of implementing HIT systems were identified with a literature review and tested with a survey of 91 health care IT managers in the Nordic countries (Denmark 14, Finland 32, Norway 25 and Sweden 20). Some similarities in the Nordic comparison indicate that a more general instrument to define success factors for HIT implementation could be designed.

Associate professor Samantha Adams from Tilburg University Law School (Netherlands) spoke about online rating and recommendations sites in health care. This phenomenon is not yet familiar in Finland, but in USA and some European countries sharing opinions and experiences about hospitals and health clinics is in use. The basic idea is to improve quality of care and patient-centeredness by increasing transparency. However, the usefulness of the sites, ethical issues and true impact on the quality of care are not simple issues and need to be discussed further.

Samantha Adams, Tilburg Law school

Samantha Adams, Tilburg Law school

The slides of the presentations will soon be available at the webpages of  the National Society of Information Studies (Informaatiotutkimuksen yhdistys, ITY)

References

Niemelä, R., Ek, S., Eriksson-Backa, K. & Huotari, M.-L. (2012). A screening tool for assessing everyday health information literacy. Libri: International Journal of Libraries and Information Services 62(2): 125–134.

Oinas-Kukkonen, H & Harjumaa, M (2009) Persuasive Systems Design: Key Issues, Process Model, and System Features. Communications of the Association for Information Systems. 24(1): 485-500.

 

Seminaari: Health Information and eServices 

Informaatiotutkimuksen yhdistyksen (ITY ry) kevätseminaari

KE 11.5.2016, klo 9.15-13.30 Oulun yliopisto, TellUs Innovation Arena, Stage-tila

Seminaari järjestetään yhteistyössä Åbo Akademin HIBA-hankkeen ja Oulun yliopiston Informaatiotutkimuksen oppiaineen kanssa. Tilaisuuteen on vapaa pääsy, myös muille kuin ITY:n jäsenille, ei etukäteisilmoittautumista. Tilaisuutta voi seurata myös etänä (ilmoita tästä kiinnostuksesi Heidi Enwaldille viimeistään ma 9.5., heidi.enwald@oulu.fi ). Seminaari on englanninkielinen. Seminaarin jälkeen samassa tilassa järjestetään yhdistyksen kevätkokous (suomeksi).

First part 9.15-11.00
Welcoming words, Heidi Enwald
Introduction to HIBA-project, Kristina Eriksson-Backa (20 min)
GASEL project: eServices for healthy ageing, Heidi Enwald (20 min)
Everyday health information literacy in different populations, Noora Hirvonen (20 min)
From all the presentations 10 min discussion
Pasi Karppinen: Health Behavior Change Support Systems – Case of Preventing Metabolic Syndrome (20 min + 10 min for discussion)

11.00-11.15 Break

Second part:11.15-12.30
Hai Nguyen: Exploring Health Information Technology implementation success factors – a comparative investigation in Nordic countries (20 min + 10 min for discussion)
Samantha Adams: Questioning the rise of online rating and recommendation sites in healthcare (30 minutes + 10 minutes for discussion)
Closing of the seminar, Heidi Enwald

Pieni tauko ja n. 12.40 alkaen ITY:n kevätkokous samassa tilassa (kesto noin 1 h). Kaikki yhdistyksen toiminnasta kiinnostuneet ovat tervetulleita kokoukseen!

eServices for healthy ageing – GASEL study: final seminar

I have been working as a researcher in multidisciplinary GASEL study (http://www.oulu.fi/gasel/gasel) funded by Tekes in 2014-2016. The project is ending and its final seminar was organized at 9th Feb 2016 in Oulu, Finland. The topic was eServices for healthy ageing.

In the beginning of the seminar the vice leader of GASEL Timo Jämsä and responsible leader Raija Korpelainen introduced the GASEL project and also other research activities among older people in Oulu. At GASEL, information on e.g., special needs of older people and aspects relating to their health have been mapped from existing knowledge (collected at http://www.oulu.fi/gasel/esiselvitys) and by a population-based questionnaire survey. The questionnaire was posted to 1500 people aged 65 or more, living in Oulu area and being home dwellers. The return rate was 61 percent (n=918).

GASEL study

The questionnaire included questions relating to attitudes towards health information, health information literacy, personality, life satisfaction, use of exercise technology, fracture and fall history, medications, sleep, social environment, nature relationship, use of information technology, gaming etc. One important issue was physical activity. It is generally known that physical activity has positive effect on health, wellness, ability for independent living, and physical functioning.

At the seminar, project manager Maarit Kangas told us about factors and actors associated with wellbeing of senior citizens. For example, 50 percent of the survey respondents stated that they were moving around more than 2 h/day. From them 45 percent stated being in at least good health and 79 percent stated feeling happy or quite happy.

Researcher Niina Keränen spoke about ICT use and gaming of older people. According to the GASEL survey seniors play games, including digital games. Stigma against gaming in older age was not a major issue for the seniors of GASEL study.

Researcher Milla Immonen shared preliminary results relating to falls and nutrition. Falls are a major problem in western societies and the reasons behind falls are multifactorial. Nutrition is not commonly taken into account in fall prevention (e.g., in interventions), even though naturally nutrition (e.g., malnutrition) affects our wellbeing.  However, according to the results of GASEL study there is a clear connection between falls and nutrition.

Posters presenting results from GASEL study

Posters presenting results from GASEL study

GASEL is a funded by Tekes and therefore erterprises are involved. At the seminar researcher Heidi Similä told about the participatory testing of enterprises products and services. Testing had been done by conducting workshops, focus group evaluation, testing events and expert evaluation. By the means of testing, information about the target groups’ needs and attitudes towards technology, and about issues related to usability and acceptability of new technologies has been collected.

At the seminar my presentation focused on how tailoring can be used in eHealth services and on what kind of results were found in GASEL survey relating to older people´s health information behaviour and attitudes towards health information. Information content of eHealth services and also interface and elements of service can be tailored. Through (computer) tailoring different kind of individuals are provided with different kind of content or elements. E.g., person´s health information literacy level, measured with a short questionaire while logging to the eHealth service, could be used as a basis for tailoring. It would impact on what kind of information, and in what form, would the service provide to the person. The preliminary result of GASEL survey indicate, for example, that men are more likely to consider that health related stories and articles are too long and that Individuals in the oldest age group (80 years or older) are most likely to avoid thinking about exercise.

We had a privilege to hear also two presentations from the collaborators of GASEL study. Professor Lars Nyberg and Margareta Lilja from Luleå University of Technology, Sweden, gave a presentation titled ”Active and safe in old age: postural control and home and social environment issues”. And we ended with a presentation by Mika Luimula from Turku University of Applied Sciences. He told us about their interesting Tekes-funded Gamified Solutions in Healthcare –project.

Nyberg, Lilja and Korpelainen

Lars Nyberg, Margareta Lilja and Raija Korpelainen

Luimula

Mika Luimula

HIBA continues the work done in GASEL study focusing on users of eHealth services from the viewpoint of Information Studies.

Blog post by Heidi Enwald, researcher in GASEL study and in HIBA project.