HIBA at the Finnish Information Studies Symposium 2018

HIBA project is organising a session on health information at the Finnish national Information Studies Symposium 2018 in Turku/Åbo Finland with two papers presenting the findings from the project. Links to extended abstracts of all presentations can be found below.

Hälsoinformation och e-hälsa / Terveystieto ja e-terveys / Health
information and e-health

WIS 2018

The biannual conference Well-being in the information society was organized in Turku on August 27-29, 2018, with the theme “Fighting inequalities”. The conference strives to be multidisciplinary and attracts delegates from several disciplines and well-being was in this conference analyzed from different viewpoints including wealth, the digital world, social policy and health. Several of the presentations were of interest also for the project HIBA.

The first keynote speaker was Director Sascha Marschang from the European Public Health Alliance, who talked about opportunities and gaps in digital health in Europe. Challenges include an ageing society and growing numbers of non-communicable diseases, as well as barriers to healthcare access. A digital divide is still a reality in Europe with e.g. elderly, lower educated and minority groups excluded, and there is a need for digital health literacy, that is a complex concept and involves several competencies, including basic, digital, media and health literacies. eHealth can provide opportunities and complement conventional healthcare, it can engage people, be fun, timely, accurate, and tailored but cannot replace face-to-face contact and Sascha Marschang claimed that health and eHealth must work in harmony. He also called for research into actual use of eHealth!

Roland Trill from Flensburg University of Applied Science, Germany, continued on the topic health literacy and had combined the eHEALS scale and the Digital Health Literacy Instrument (DHLI) to study current digital health literacy of diabetes in Germany. He called for further research on digital health literacy and claimed that health care professionals are target groups for improving this literacy. Anne-Marie Tuikka (University of Turku) showed that the claims by the keynote speaker seemed to be true. She had studied nationwide data gathered by the National Institute for Health and Welfare and focused on the digital disability divide, defined as the gap between disabled and non-disabled people. The results showed that internet use was related to age, education level, marital status, and employment, and that people needing disability services used internet less than others. Internet can have an empowering impact on disabled people, but the results indicate that there could be a digital disability divide in Finland.

 

The conference chair, professor Reima Suomi, opening the WIS 2018 conference (photo: Gunilla Widén)

Nilmini Wickramasinghe from Deakin University, Australia, presented a study on the use of games for controlling diabetes and obesity. A pilot study already showed that there is an interest in using games for this purpose. Vitalija Petrulaitiene (Tampere University of Technology), on the other hand, presented and overview of how employee well-being can be supported through digital services, especially applications related to fitness, nutrition, or ergonomics. Marina Weck from Häme University of Applied Science presented digital assistive technology that means to use ICT for the support of everyday tasks and activities among elderly. A pilot study found that ageing people’s needs and preferences for digital assistive technology were positive, although they were not yet familiar with the latest devices or applications, and hence, for example, healthcare service providers could increase the utilization of technology and facilitate the integration of digital assistive technology. Hanna-Leena Huttunen (University of Oulu) had found that patients suffering from migraines are interested in using wearable sensors and mobile applications to manage their symptoms, especially to identify early symptoms and help them in everyday life.

The conference dinner was held at Turku Castle

Susanne Hämäläinen (Karelia University of Applied Sciences) and Päivi Sihvo (Savonia University of Applied Sciences) claimed that digitalization has not progressed as quickly as desired in social and health care and that both employees and citizens lack know-how and education about new technological developments. Digitalization should help customers and increase their welfare and that is why eProfessionals that can act as moderators between IT staff and health professionals are one important solution for digitalization. Tiina Nokkala (University of Turku, School of Economics) said that health information systems are not patient-centred, in the best case patients can look at their own medical records, but not add anything to them. There is a need for shared decision-making, and being able to make own entries can enhance feelings of management and empowerment among patients, but in order for patients to make their own entries in their records (e.g. blood sugar or blood pressure measurement data), there is a need to use similar metadata as for entries by professionals. Jani Koskinen from Turku University School of Economics, on his part, suggested that as modern healthcare relies strongly on technology and information systems there is also a special need for eHealth ethics. eHealth ethics could be the intersection of the traditional codes of ethics used within the two fields of healthcare and information technology or systems.

Kristina chaired a session on digital health and later presented a short paper by Hai Nguyen and herself based on first results from the survey of use and experiences of the online diabetes risk test at the website of the Finnish Diabetes Association. The paper is found in the proceedings. The results indicate that an active information-seeking style is sígnificantly related to intentions to seek more information in the case of increased risk of diabetes type 2, and that this has to be taken into consideration when providing information on websites offering self-assessments.

 

Pacific Asia Conference on Information Systems (PACIS 2018)

PACIS 2018 was organized in 26th to 30th June in Yokohama, Japan. It invited submissions in current and emerging areas of Information Systems research, especially those related to the conference theme “Opportunities and Challenges for the Digitized Society: Are We Ready?”

The annual conference offered keynote speeches and several concurrent tracks in addition to workshops. Tracks focused e.g., on smart cities, e-government, human computer interaction, IS education and e-learning and IS in healthcare.

The first keynote was given by Ikujirō Nonaka, emeritusprofessor, best known for his study of knowledge management. Nonaka has also proposed the SECI model, to present the spiraling knowledge processes of interaction between explicit knowledge and tacit knowledge.

Keynote by Nonaka

PACIS had attracted over 500 registered participants from all around the world. The conference took place in very modern Minato Mirai district in Yokohama.

Sight of Minato Mirai, the central business district of Yokohama.

Lunch with a view. Bentō lunch box provided at the conference.

HIBA-project presented work in progress by Nguyen, Eriksson-Backa and Enwald with the title: Preliminary results of a survey on user opinions and experiences on an online diabetes risk test.

Heidi Enwald presenting the poster by HIBA project.

Finland was nicely represented also as the best paper award was given to Finnish-Australian collaboration:

Ethical Evaluation of a Value Sensitive Persuasive System: Case Milky Way
by Liisa Kuonanoja (University of Oulu), Shahla Meedya (University of Wollongong), Khin Than Win (University of Wollongong) and Harri Oinas-Kukkonen (University of Oulu)

The conference proceedings and also our paper can be found here:

https://drive.google.com/drive/folders/1aI6jwwAAF40h238qsR85n7Er1ZOdQFmf

 

MIE and VITALIS in Gothenburg, April 2018

Medical Informatics Europe (MIE) conference was arranged in Gothenburg, Sweden in 24.-26.4.2018. At the same time Scandinavian eHealth event, VITALIS, took place in the same premises.

MIE covers a wide range of topics relating to medical informatics – from health literacy, different eHealth tools to data mining.

The first MIE was hosted in Cambridge, UK in 1978 and therefore MIE2018 marked the 40th anniversary for the conference. MIE2018 offered around 200 oral and 150 poster presentations. In addition, there were around 50 workshops, demonstrations and tutorials to attend to.

MIE2018 and Vitalis

Tuesday started early with a set of sessions and workshops. From HIBA research group Heidi Enwald was one of the organizers and presenters of the workshop “Re-defining eHealth Literacy for the 21st century. Discussing the evolution of the concept from different perspectives”.

In the workshop and, also afterwards, different definitions and measures of eHealth literacy were discussed. It was seen that we also need to get forward from discussing these issues; we need to identify what differentiates eHealth literacy from other health related literacy concepts, what are the future skills and abilities that relate to this concept and how should they be addressed. Heidi Enwald represents HIBA group in eHealth literacy network that continues discussion around the topic.

After Opening ceremony a Keynote speech was given by Patricia Flatley Brennan, the director of National Library of Medicine.

Keynote speech by Patricia Brennan

She spoke, among other things, about data-powered health that includes optimizing medication effectiveness, more efficient pathogen detection and targeted therapies. She mentioned that the nature of evidence in evidence-based medicine is also about to change. Furthermore, data does not take care of itself and therefore, e.g., data savvy librarians are needed.

As mentioned, MIE2018 provided many overlapping sessions to choose from and the decision was not always easy. Aging did not rise as a topic in many presentations, but there were some. For instance, Madeleine Blusi from Umeå University talked about aging in rural areas and their project that utilizes participatory design and attempts to create a service for including aged people into social activities they would otherwise no longer be able to join.

Madeleine Blusi from Umeå University

The VITALIS exhibition area was also available to visit by the participants of MIE2018.

Several kind of meetings were made possible by MIE2018 and VITALIS

The exhibition mostly contained booths of Swedish eHealth companies and made possible also the discussions between, e.g., researchers and advocates of industry.

The proceedings book of the conference is open access and can be found from the website:

https://mie2018.org/home/proceedings/

Current research in health information literacy research

Isto, Noora and Heidi from HIBA project participated in the 5th European Conference in Information Literacy in Saint-Malo, France. All were a part of the Health Information Literacy Special Session organised by Anne-Kathrin Mayer (ZIPD, Leibniz Institute for Psychology Information) and Maija-Leena Huotari (University of Oulu).

In the session, Veronika Kuhberg-Lasson (ZIPD) discussed the health information literacy knowledge (HILK) of students from vocational schools in Germany. According to the study, lower education lead to lower HILK with no significant differences between vocations. However, when tested for personality differences, the authors suggested that instead of the level of education, the use of untrustworthy information sources might be related to higher levels of extraversion.

Heidi presented a paper on the Relationship between Everyday Health Information Literacy and Attitudes towards Mobile Technology among Older People, a cooperation between researchers participating in the HIBA project, Oulu Deaconess Institute and the University of Oulu. The study investigated how everyday health information literacy (EHIL) was related to the use of traditional and advanced mobile information technologies, and how older adults felt about the use of advanced mobile technologies (i.e. smart phones, tablet computers). Regarding their EHIL, only 28% felt that it is easy to access reliable health information from the Internet. A minority had used advanced mobile information technologies, but the attitudes in the group of respondents were generally rather positive. The findings showed that confidence and positive opinions on EHIL had more positive opinions on mobile information technology. The study suggests that older adults with different levels of EHIL should be engaged in the development of new mobile information technologies.

Noora presented a paper related to EHIL together with Teija Keränen and Maija-Leena Huotari titled Examining the Applicability of the Everyday Health Information Literacy Screening Tool in the Context of Energy. In the study, The factorial structure of the EHIL screening tool modified for energy information was similar to the original tool. The tool can be used to find individuals who lack motivation or have difficulties in finding or evaluating information.

Anna-Maija Huhta (University of Oulu), who has previously worked in HIBA project, presented a co-authored paper Concepts Related to Health Literacy in Online Information Environments: A Systematic Review. Huhta and her colleagues had conducted a review of how information is approached in various health related literacy concepts. Majority of the analysed texts were written in medical and health sciences. The most common concepts were health literacy, ehealth literacy, health information literacy, and (everyday) health information literacy. Similar to all definitions was that all focussed on the ability to understand, comprehend and use information but also to use information as a tool. Differences related to the role of prior knowledge, information needs, critical evaluation of information and types of information considered.

Sigríður Björk Einarsdóttir and Ágústa Pálsdóttir had investigated the health information literacy of parents of children with a disability or long-term illness using qualitative interview study. The authors conclusion was that information seeking takes time and especially with information that should be easily available, takes time and effort.

Finally, Anne-Kathrin Mayer (presented by Veronika Kuhberg-Lasson) investigated the different approaches to measuring information literacy skills. The authors had found discrepancies between objective and subjective measures, and suggested further research on their causes and relations to other factors.

As a whole, the presentations show that it is not uncomplicated to measure and study health information literacy and to say what should be measured and how. Appropriate practices, confidence and good outcomes depend on multiple factors — as their lack of. At the same time, it seems that it is possible to develop scales that can be useful as proxies of certain constellations of practices to understand better how people interact with health information.

2017-09-20 at 2 58 pm: Sheila Webber live blogged the session at http://information-literacy.blogspot.se/2017/09/health-information-literacy-session-pam.html

HIBA at Information Studies Days 2016

HIBA researchers were present at Information Studies Days (Informaatiotutkimuksen päivät) held in Tampere at 3rd and 4th of December 2016.

Information Studies days is a national, biennial conference arranged by the National Association of Information Studies ITY ry (Informaatiotutkimuksen yhdistys) and the three departments that provide education in the field of information studies in Finland, namely, Information Studies at the University of Oulu, Information Studies and Interactive Media at the University of Tampere, and Information Studies at Åbo Akademi University. In 2016 the days were organized at the University of Tampere with around 150 participants.

As the Chairman of ITY, HIBA researcher Heidi Enwald opened the days. Her welcoming words were followed by Kai Halttunen’s talk about the history of these days and Professor Erkki Karvonen’s keynote speech on how information and communication technologies shape society and culture.

I myself hosted a session labeled Health infomation behaviour, health information literacy and e-health with four presentations:

Heidi Enwald presented preliminary results of our systematic review on previous research on the views of older adults of the contents of eHealth services. It seems that relatively few studies have focused on the content of these services the main interest being in the acceptance of used technologies.

Jonas Tana talked about infodemiology which refers to the study of the determinants and distribution of health information in an electronic medium with a goal to improve public health. In his doctoral study Jonas is going to investigate how infodemiological data can be used to increase understanding of online health information seeking behaviour.

Anna-Maija Huhta

Anna-Maija Huhta explaining her research at Information Studies Days 2016. Picture: Heidi Enwald

I presented the framework of the project CogAHealth that has just started at the University of Oulu. In this project we are focusing on young people’s conceptions of cognitive authority in the context of health, that is, who and what do young people believe in health issues and how these beliefs are constructed. This joint project with Information Studies and Educational Sciences at the University of Oulu is funded by the Academy of Finland. In connection to this, doctoral student Anna-Maija Huhta, who is part of the CohAHealth research group, talked about her research concerning young people’s new health literacies. In particular, Anna-Maija is interested in studying young people’s literacy practices in social media.

HIBA researcher Kristina Eriksson-Backa hosted a session Information behaviour and information practices among minority and special groups with four presentations:

Ari Haasio talked about sharing information in a “small world” by prensenting a study of a discussion group called Hikikomero. Based on his analysis of the discussions, Ari presented a model of interaction in discussion group posts. Nahla Hewidy spoke about the service needs of asylum seekers. She and her colleagues had studied the needs of this group of people in order to formulate guidelines to develop and improve library services.

A doctoral student at the University of Oulu, Aira Pohjanen, presented her study concerning the information seeking of gender minorities. The study focused on the importance of peers in information seeking. At the end of this session, J Tuomas Harviainen presented an interesting and perhaps a bit unusual study on the information practices of Finnish sadomasochists.

In a parallel Knowledge management session HIBA researcher Helena Känsäkoski presented her study on information and knowledge processes in health care. In her presentation, Helena introduced a model of information and knowledge processes in health care and presented results of an empirical study on the role of the patients and families in these processes.

Audience

Audience listening to a presentation at Information Studies Days 2016. Picture: Heidi Enwald

Overall, this year there were 32 presentations at the Information Studies Days the topics ranging from information behaviour to digital humanities and data management. Extended abstracts for all of the presentations were published in Informaatiotutkimus 35(3).

Learning about information literacy at ECIL and participating ASIST

The European Conference on Information Literacy (ECIL) took place at Prague, Czech Republic at 10.-13.10.2016. Straight after ECIL the Annual Meeting of the Association for Information Science and Technology (ASIST) gathered researchers all around the world to Copenhagen, Denmark. Timing of the conferences provided me a great opportunity to join both of the conferences.

ECIL is initiated and organized by the Department of Information Management of Hacettepe University and Department of Information and Communication Sciences of Zagreb University. The main theme this year was Information Literacy in the Inclusive Society. IMG_9144_ECIL_blogiin

The keynote speeches were given by Tara Brabazon and Jan Van Dijk, and futhermore, invited speakers were Ole Pilerot, Vít Šisler and Annemaree Lloyd. Especially the keynote speeches raised discussion as Tara was intentionally very provocative in her speech and Jan´s perspective was from outside of the information and library science field.

As a member of the HIBA project I presented some of our results relating to older adults health information literacy skills. The study presented was part of the GASEL study.

WP_20161010_17_44_11_Pro_blogiin Heidi

Heidi´s PechaKucha presentation on “everyday health information literacy of older people in Finland”.

ECIL focused strongly on libraries and information literacy teaching, but there was always also a more theoretical and/or general paper or panel sessions to attend for.

IMG_9410_ECIL blogiin

Example of the interesting panel discussions in ECIL.

The abstract book of ECIL can be found here: http://ecil2016.ilconf.org/wp-content/uploads/2016/10/ECIL2016_BoA.pdf and selected full text papers will be later published in a ECIL’s Proceedings Books are  published by Springer (agreement with the publisher is on yearly basis) under Communications in Computer and Information Science series (CCIS).

ASIST´s theme was Creating Knowledge, Enhancing Lives through Information & Technology. Plenary speeches were given by Greg Welch from University of Central Florida and by Markus Bundschus from Roche Diagnostics.

The topics of ASIST presentations and panels covered all from health information behaviour to digital data curation and the science of games. In addition to sessions relating to information behaviour I found myself listening sessions about e.g., multiculturalism of LIS education, digital sociology and information science research, open peer review and lifelogging. Examples of the panels in ASIST: IMG_9862_ASIST blogiinIMG_9811_ASIST blogiin

ASIST included not only paper presentations and panels but also several poster presentations. Again I was there presenting the results relating HIBA and GASEL projects. This time the topic was “opinions and use of mobile information technology around older people”.

IMG_9828_ASIST blogiin Heidi

Heidi with the poster.

The ASIST proceedings and information of the previous conferences can be found here (free view for ASIST members): https://www.asist.org/publications/annual-meeting-proceedings/

Older people were present also in the street view of Copenhagen with a campaign “Do we ever stop dreaming?”

IMG_9796_ASIST_blogiin

Next ECIL will be organized in St-Malo, France and next ASIST at Washington DC. Shall we meet there?

(Post blog written by Heidi Enwald)

Focus on health information behaviour

IMG_9067_Isto_HIBA

Heidi, Noora and Isto from HIBA participated in this year’s ISIC – The Information Behaviour Conference in Zadar, Croatia. Also Anna-Maija who worked in the project in autumn 2015 was with us in Zadar.

Heidi Enwald, foto: Mate Juric

Heidi reported findings from an earlier GASEL project in a paper titled Health information behaviour, attitudes towards health information and motivating factors for physical activity among older people: differences by sex and age together with coauthors, Noora  and her coauthors presented a poster Validating the factorial structure of the everyday health information literacy screening tool in three different populations, and we all from HIBA presented the project in a poster, imaginatively titled Taking health information behaviour into account in the development of e-health services.

IMG_8904_Ian

Prof. Ian Ruthwen

There were also several other interesting papers relating directly to the themes of HIBA. Prof. Ian Ruthwen discussed in his opening keynote information behaviour during significant life events. The talk gave much food for thought as health related events are a major category of these types of major episodes in life but also because it is not always the case. Much of the everyday health and health information practices are not experienced as significant events that apparently also affects how we react to them and what kinds of information practices stem from these mundane events and how they differ from more significant episodes of life.

Of other interesting papers, you could mention the two other papers in Heidi’s session. Ina Fourie and Valerie Nesset reported of an exploratory review of research on cancer pain and information-related needs, and Theresa Anderson and Ina Fourie discussed about information interactions related to empathetic care for the dying.

Seminaari: Health Information and eServices 

Informaatiotutkimuksen yhdistyksen (ITY ry) kevätseminaari

KE 11.5.2016, klo 9.15-13.30 Oulun yliopisto, TellUs Innovation Arena, Stage-tila

Seminaari järjestetään yhteistyössä Åbo Akademin HIBA-hankkeen ja Oulun yliopiston Informaatiotutkimuksen oppiaineen kanssa. Tilaisuuteen on vapaa pääsy, myös muille kuin ITY:n jäsenille, ei etukäteisilmoittautumista. Tilaisuutta voi seurata myös etänä (ilmoita tästä kiinnostuksesi Heidi Enwaldille viimeistään ma 9.5., heidi.enwald@oulu.fi ). Seminaari on englanninkielinen. Seminaarin jälkeen samassa tilassa järjestetään yhdistyksen kevätkokous (suomeksi).

First part 9.15-11.00
Welcoming words, Heidi Enwald
Introduction to HIBA-project, Kristina Eriksson-Backa (20 min)
GASEL project: eServices for healthy ageing, Heidi Enwald (20 min)
Everyday health information literacy in different populations, Noora Hirvonen (20 min)
From all the presentations 10 min discussion
Pasi Karppinen: Health Behavior Change Support Systems – Case of Preventing Metabolic Syndrome (20 min + 10 min for discussion)

11.00-11.15 Break

Second part:11.15-12.30
Hai Nguyen: Exploring Health Information Technology implementation success factors – a comparative investigation in Nordic countries (20 min + 10 min for discussion)
Samantha Adams: Questioning the rise of online rating and recommendation sites in healthcare (30 minutes + 10 minutes for discussion)
Closing of the seminar, Heidi Enwald

Pieni tauko ja n. 12.40 alkaen ITY:n kevätkokous samassa tilassa (kesto noin 1 h). Kaikki yhdistyksen toiminnasta kiinnostuneet ovat tervetulleita kokoukseen!